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Peripartum and Postpartum Cardiomyopathy Stories

Beyond statistics and clinical observations, there are stories and lives.

These are the stories of women who have faced death; their heartaches, their grief, their joys, dreams and hopes.

Read. Share. Learn. Heal.

Stories can be tagged public or private.

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PPCM with subclinical hyperthyroidism

I'm 27 years old and was just diagnosed with PPCM yesterday. I gave birth to my third child, Adelaide, on October 16, 2016. I'm almost positive that I had PPCM after my second child, Dawson, but I was never diagnosed. Right after I had my son I ended up in the ER with high blood pressure, which I never had before. They ruled out pre-clampsia, did a chest X-ray and sent me home. My blood work also came back that my tsh levels were low, pointing toward hyperthyroidism. I was having severe anxiety ...



By Sarah Rutherford Posted On Friday, 24 March 2017 Comments : 0

A Mother's Heartfelt Journey

In 1988 I gave birth to a beautiful baby girl, Amber Elise. She was 14 days late and I was in labor for 17 hours before the doctors decided to do an emergency C-section because the baby showed some signs of distress and Momma was too. The surgery went well, even though at one point I was desperately begging the anesthesiologist to listen to me, saying "I could not breathe".. he ignored my pleas... so I figured it was only from the epidural/ saddle block that I had received and I thought all wa...



By Beth Crutcher Posted On Wednesday, 05 February 2014 Comments : 0

Still Recoverying And I Won't Give Up

I'm 22 years old, when I was 18 I found out I was pregnant with my son. My pregnancy went pretty well. No complications. Toward the end of my pregnancy I started feeling short of breath, had a lot of swelling. When I went to my last appointment they just assumed it was regular pregnancy symptoms. I had my son in September 2013. Every thing went well, we went home. I few weeks go by and still short of breath, tired, weak. I go to a urgent care. They tell me I have post partum cardiomyopathy. They...



By Netia Smith Posted On Wednesday, 01 February 2017 Comments : 0

Surprise

Found out i had this when I went into labor at 33 weeks with my twins i have a icd placed aug 15 2016. Still being treated



By Kristin Mau Posted On Sunday, 22 January 2017 Comments : 4

Fool me twice...

I was never, ever, never going to have another baby. My first son came out perfect after 3 hours of pushing, tearing and epidural wearing off during the episiotomy. Two hours later I was in the bathroom with a nurse, watching more and more blood spread all over the place. I was sent home with iron pills, half my blood, a baby, and PTSD. I don't remember anything about my baby the first year. I remember pain, exhaustion, doctor's appointments, gall bladder surgery and a host of friends who lifte...



By Marykate Newcomb Posted On Wednesday, 23 November 2016 Comments : 0

It was a normal pregnancy

Hi My name is Tara. In the last trimester of my first pregnancy I began to feel out of breath more often, I couldn’t lay flat in bed and had to prop myself up at night with multiple pillows, I was going to the bathroom a lot, and I had excessive swelling and by the last weekend it started to swell above my knee…but this was all normal pregnancy symptoms, right? I started getting bad headaches that weekend, too. I had my regular OBGYN checkup that Monday but when I got there my blood...



By Tara Reyes Posted On Thursday, 17 November 2016 Comments : 0

Believe It Or Not

I was recently informed that I had a 'silent heart attack'. Thinking back on the symptoms I was asked about by the cardiologist I realized this was during prodromal labor in July. I experienced very intense contractions, one after another after another but they didnt settle into a regular rhythm. Instead they felt like they were working against something or trying too hard to make things work. Looking back the symptoms I experienced I chalked up to labor but now I realize my heartburn, back pain...



By Jill James Posted On Sunday, 23 October 2016 Comments : 0

Myheartsisters.com has been developed to raise awareness about Peri and Post Partum Cardiomyopathy and is used for educational purposes only. We encourage you to consult with health care professionals to obtain medical advice. This site contains personal accounts of heart failure in pregnancy. Information should not be used as an alternative to seeking professional medical help, where a proper evaluation or diagnosis can be made in person through a face to face consultation and medical tests.

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