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Diagnosed during first pregnancy

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My Details

Foxie Mac;

Date Diagnosed :9/17/2014

Inital EF :20%

Current EF :60%

Pregnacy Number :1

Im so thankful that i happened upon this site!!  I wish I knew that PPCM was a sickness before I was pregnant.  I thought all my symptomes were just a normal part of pregnancy, like so many other victoms.  Most pregnant women dont appreciate it when you share your good news with somebody and they tell you their horror story of pregnancy/labor/delivery.  I was one of these woman.  I am a full time hair dresser and I heard every story you could think of about how so and so's delivery went so wrong....  but now,  I wish that somebody sat in my chair who educated me about PPCM. 

MY SYMPTOMS:

month 5.  I start leaking breast milk a little.  This increases as the months go on to the point where I need nursing pads. No big deal. I was actually excited about this because I knew I wouldnt have trouble with my milk coming in! (.....Hold on to this tidbit for later....)

week 34.  feeling nausa and bad headaches with no relief from tylonol.  feet starting to swell.  feeling out of breath and heart pounding.  came extreamly close to passing out at work when on my feet for too long or when arms were up for an extended time. ex. a blow dry or full highlight.

these feelings continued to get worse and worse over the next weeks.

week 37.  cant walk from car to house with out stopping for a breath  (a very short walk).   pitting adeamia from the knees down.  heart racing at all times.  cannot recline without a drowning sounding cough.  by this week, it was painful in my back and chest to cough.  I could only find minimal, temporary relief by taking a burning hot shower till there was no more hot water left.  It was also painful to stand and i was loosing feeling in my feet so I would put a yoga ball in the tub and get on my knees and let the water beat on my back.  I would do this every 4 hours during the last 3 days before delivery.  These last 3 days, I didnt sleep at all. day or night. I would try sitting on couch with pillows, sitting at kitchen table with my head resting on the table and the boppy around my belly.  nothing worked.  Also had trouble producing urine.  At my last OB appt, I was told, by the nurse, that I didnt produce enough to test that day.  "sit in waiting room and drink a full bottle of water and give another sample".  I drank and waited till they were getting ready to close.  No pee!!  She tells me Im not drinking enough and sent me home.  I was extreamly fustrated at this point and starting to think that, what im feeling CANNOT be normal.  I wanted a natural delivery. no c section or induction however, now, I wanted to go to the hospital and didnt want to come home till the baby was out of me!!  I didnt care how they did it! 

Sep. 17th.  Im in tears. husband calls my ob. we go to Virtua Hosp. to take bp.  resting heart rate is in high 120's.  bp is low.  They tell my husband to quickly get changed because we are going to do c-sec.  I remember them running me down the hall and feeling scared of whats going on (neither of us had any idea) but at the same time, didnt care because the breeze felt so good!... and i knew the baby was coming! 

I dont know if its possible for a woman with this to withstand going through labor.  I had so much fluid around my heart and in my lungs that it was very hard to lay on the operating table. I simply couldnt get any air in my lungs!  When they tell you in surgery " youre going to feel a little pressure now"... oh man!!  I was screaming and trying to sit up because I thought I was going to black out from lack of air.  Thought I was dying.  I remember my horrified, helpless husband lightly tapping my arm, saying, "Its almost over". 

Next thing I remember, Im now in ICU. Havent held my daughter.  EF was at 20%. I have more ports on me then I knew was possable for one person to have.  By day 4, I remember holding my sophia!  This was the Best day of my life!  I was of course unable to breastfeed like I wanted to,  due to the meds.

Was in ICU for 8 days and then moved to high risk OB for 2 more days.  I was told that another pregnancy "isn't available to me".  I was so thankful that I had a healthy little girl that was all mine!- but at the same time, so upset and dissapointed at how the way my whole pregnancy/birth experience had gone.  I wanted skin-to-skin right after delivery! I wanted to walk my baby up and down the halls in her crib like all the moms do!  And they are telling me this was my 'one and done' birth experience.  Very sad for any woman to hear. 

Today: Im feeling so much better!  last echo was at 60%.  I am starting cardiac rehab the week after Christmas and going back to work next month!!  I strongly believe that I have recovered as far and as quickly as I have because I had so many people praying for me.  people I dont even know!  I know The Lord has me here for a reason....  and it may only be so I can inform any man or woman who sits in my chair at work, of my pregnancy/birth experience and refer them to this web site.  woman and doctors must know the symptoms of PPCM and not brush it off as just 'this is just what 9 months along feels like'. 

Ive read recently ( www.ncbi.nih.gov ) that there is a link between the hormone that produces breast milk and PPCM.  Prolactin.  It is a pro-inflammitory and increases blood flow.  I wonder if I was producing too much of this hormone.  It makes sence to me that a possable hormonal imbalance may play a part in PPCM.

Stay strong to anybody or  any family member who is a victom of PPCM. WE NEED TO RAISE AWARENESS!

By Date Added: 12/24/2014 Date Last Updated: 12/24/2014

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Story Comments


re: Diagnosed during first pregnancy
Friday, 03 April 2015 by Krista Baldyga Saverase

Wow that's great she cut your in half I hope she does mine as well. I grew up in erial too small world!! I am going to ask her about rehab this tuesday when I go! Yes Beta blocker does that to me too I wore a heart monitor and it said I had ectopic beat and it's nothing to worry about they told me as long as they aren't constant they are normal. where in erial did you grow up? I lived near fire station


re: Diagnosed during first pregnancy
Friday, 06 March 2015 by Foxie Mac

thats a great improvement since you were diagnosed!!  im glad youre doing better... and that you saw dr. rubin! i just saw her again myself.  im doing well~ she cut my meds down even more and did another echo. are you still on a beta blocker?  do you ever feel like your heart is beating a little fast at times?  i feel this sometimes but idk if im just paying too much attention, you know?  did dr. rubin sy anything about rehab?  i wonder if will you do it in the virtua bulding in wash. twp. we live close by... i grew up in Erial! i hope your doing well, and the baby too. 


re: Diagnosed during first pregnancy
Friday, 27 February 2015 by Krista Baldyga Saverase

Hi I just wanted to let you know I now see Dr.Rubin at Jefferson you're right she is great! My ejection fraction is up to 47% still not recovered but hopefully I will be soon. Hope all is well with you also


re: Diagnosed during first pregnancy
Friday, 27 February 2015 by Krista Baldyga Saverase

Hi I just wanted to let you know I now see Dr.Rubin at Jefferson you're right she is great! My ejection fraction is up to 47% still not recovered but hopefully I will be soon. Hope all is well with you also


re: Diagnosed during first pregnancy
Friday, 27 February 2015 by Krista Baldyga Saverase

Hi I just wanted to let you know I now see Dr.Rubin at Jefferson you're right she is great! My ejection fraction is up to 47% still not recovered but hopefully I will be soon. Hope all is well with you also


re: Diagnosed during first pregnancy
Friday, 27 February 2015 by Krista Baldyga Saverase

Hi I just wanted to let you know I now see Dr.Rubin at Jefferson you're right she is great! My ejection fraction is up to 47% still not recovered but hopefully I will be soon. Hope all is well with you also


re: Diagnosed during first pregnancy
Friday, 27 February 2015 by Krista Baldyga Saverase

Hi I just wanted to let you know I now see Dr.Rubin at Jefferson you're right she is great! My ejection fraction is up to 47% still not recovered but hopefully I will be soon. Hope all is well with you also


re: Diagnosed during first pregnancy
Thursday, 01 January 2015 by Foxie Mac

Oh wow thata great that in 5 weeks you were already ip to 35%!! I'm sure my march it will be much higher!! You'll have to post after you get your results!


re: Diagnosed during first pregnancy
Saturday, 27 December 2014 by Krista Baldyga Saverase

Thank you!! Yes I am looking forward to rehab! I get my echo done in March t had one 5 weeks after I delivered and it showed my ejection fraction went from 15 to 35 I haven't had one since. so I am hoping to be at 55 or better. Good luck with everything!!


re: Diagnosed during first pregnancy
Saturday, 27 December 2014 by Foxie Mac

Good luck with your recovery.... When you're ready for rehab, it will feel great! it feels so good to be active and sweat a little again! It feels so good mentally also!  


re: Diagnosed during first pregnancy
Friday, 26 December 2014 by Foxie Mac

Hey! I remember them telling me I may need to go to Jeff also.  I actually went there after I was home for a month to see Dr. Rubin. She works with PPCM cases. She is great! What did you do with ur baby while you were there? And are you doing rehab at virtua also? My nurse there said there are two other young girls with ppcm doing rehab at the Voorhees location.


re: Diagnosed during first pregnancy
Friday, 26 December 2014 by Krista Baldyga Saverase

Hi I delivered at virtua as well and was sent to Jeff with ppcm! That's great you are fully recovered already!!!


re: Diagnosed during first pregnancy
Friday, 26 December 2014 by Krista Baldyga Saverase

Hi I delivered at virtua as well and was sent to Jeff with ppcm! That's great you are fully recovered already!!!


re: Diagnosed during first pregnancy
Friday, 26 December 2014 by Krista Baldyga Saverase

Hi my Dr. Didn't order cardiac rehab yet I will ask him at next appointment. I am hoping after next appt I can start seeing Dr.Rubin at the voorhees location going back and forth to Jeff can be difficult with 4 little ones lol! 


re: Diagnosed during first pregnancy
Friday, 26 December 2014 by Krista Baldyga Saverase

Hi I delivered at virtua as well and was sent to Jeff with ppcm! That's great you are fully recovered already!!!


re: Diagnosed during first pregnancy
Friday, 26 December 2014 by Krista Baldyga Saverase

I forgot to mention in last message my daughter went to Jeff with me! She was in Nicu because she was a month early. I was in Jeff for 2 weeks she was discharged a week before me. 


re: Diagnosed during first pregnancy
Friday, 26 December 2014 by Krista Baldyga Saverase

Hi I delivered at virtua as well and was sent to Jeff with ppcm! That's great you are fully recovered already!!!

 

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