;

Discovery and Recovery: my PPCM story

;

My Details

Lisa PeaceFree Galloway;

Date Diagnosed :7/7/2007

Inital EF :25

Current EF :

Pregnacy Number :1

I should have known something was wrong when I had to sit to take a shower. i should have known something was wrong when i couldn't stop coughing and couldn't lay down at all much less to sleep. i was swollen and could hardly walk and breethe. Then I couldn't hold my baby..I had to get my older son to take care of him...thats when it hit me i was in trouble. I thought i was just being a wussy. I had had a c-section and i had never had surgery before..i thought I just wasn't handeling it well or maybe something had gone wrong with the c-section. I had no idea what was really happening.

07/07/07, One week after my son was born,  I was admitted into Spartanburg Regional hospital. after probes, blood and tests my husband was told that I was lucky to be alive, much longer and I would have died. my ef was in the 20's and my lungs were full of fluid. I had neumonia and was in heart failure. I was placed in ICU for 4 days. At first i wouldn't eat..had no desire nor the energy. My doctor told me to eat or he would put a feeding tube down my throat. I cried and slept and took medication. I was too sick to see my baby and ICU is no place for a new born.

On the 5th day they took me to recovery and i finally got to see my baby. I stayed in the hospital 4 more days. the doctors came and talked to me a heart doctor and a lung doctor. I was told that I had been dxed with PPCm..although I had no idea what it was. They told me I could not breast feed my son b/c the medication could come through my milk. I was told about how I almost didn't make it to the hospital and how lucky I was and then they delt the final blow..they told me I shouldn't have more children, that there was a very high risk of mortality if I were to become pregnant again and they agreed that i should not chance it. Soon I was released and went home on oxygen, a blood pressure pill, a heart medication, a potassium pill and 2 fluid pills. i went into a depression that i can't explain. i was not harmful to anyone i loved my baby and took care and did everything for my olders on as well..i did everything just like before..a little more slowly and with more help..but it was like a daze..and i would cry and mourn the children i wouldn't have and cry over the daughter i wouldnt have and feel sorry for myself that i had to take all these medications, that i couldn't breast feed my baby like i wanted, that i couldnt have more, that i couldn't be as active right away with my boys, that i almost died..i couldnt get past that...the fact that it all was almost over....there were so many things i had not done and my baby he was just born and I was scared to sleep and scared of everything. 2 months after being at home i was off the oxygen and 11months after being home i was being weened off the medication.

I found the PPCM boards on facebook after researching online for a while. I wanted to learn more about it and why I had it. it pissed me off so bad that there was no real reason...there was nothing to blame... There was no way to get back what I had lost. noting to say..ok if I do this and this it will make this happen and I can have another baby....I found the PPCM boards and I finallly found answers. I asked so many questions i know people were annoyed with me. i shared my pain and my fears and my worries and finally i felt like I could start to move on. After a few years i started thinking about trying again..we had looked into it and women who had recovered fully were trying for post ppcm babies, some had post ppcm babies and were fine. over 2 or so years I floundered between wanting to try and being afraid. I would see success and then I'd see a woman who relapes and was worse or another sister who passed..there for a while it seemed a heart sister was leaving us all the time...too many women lost to this horrible thing called ppcm. I started rethinking the trying again.....then my decision was made for me yet again....

I had a relapse in Feb. of 2013. i had a severe chest infection and very high stress. It threw me back into heart failure again. This time I was told that they believe i was not fully recovered from the last time and that i was taken off my medications too soon before and that i have been lucky not to have had a recurance sooner than this. i got to the hospital soon enough this time that I did not need to go to ICU but I did spend 10 days in the hospital. I came out with pretty much the same medications, minus the potassium and adding on metformine to help with pre diabetes. also i came home with a dx of sleep apnea.

i cried and went into the same depression I went into the first time. I asked my dr.s if i am going to have to always deal with the possibility of recurring heart failure and they said yes. They told me this time that I would probably be on my medications forever. So now I live with it day in and day out dealing with swelling and dr. appointments and medication. but it could be worse. and at least I am watching my boys grow and live. We were also blessed with a granddaughter. and although we were none too happy for our then 16  year old to be a daddy, we grew to understand what a blessing she is to us and our fsmily. I still struggle emotionally at times and physically at times as well...but I'm alive and living.

By Date Added: 10/19/2013 Date Last Updated: 10/19/2013

About Myheartsisters.com

Myheartsisters.com has been developed to raise awareness about heart failure in pregnancy (PPCM) and provide support for heart sisters through storytelling and friendship.

Join My heartsisters – as a heart sister, cardiologist/researcher or community member and help raise awareness about heart failure in pregnancy. Awareness will save lives.

 

Story Comments


re: Discovery and Recovery: my PPCM story
Thursday, 27 November 2014 by Aimee Brown

Lisa, may you rest now.  May your family be surrounded with love.  <3


re: Discovery and Recovery: my PPCM story
Thursday, 27 November 2014 by Aimee Brown

Lisa, may you rest now.  May your family be surrounded with love.  <3


re: Discovery and Recovery: my PPCM story
Thursday, 27 November 2014 by Aimee Brown

Lisa, may you rest now.  May your family be surrounded with love.  <3


re: Discovery and Recovery: my PPCM story
Thursday, 06 November 2014 by Carrie LaRoach

Rest now sweet heart sister. :(


re: Discovery and Recovery: my PPCM story
Wednesday, 05 November 2014 by Jeanee Andrewartha

Lisa passed away in her sleep in November 2014. Rest in peace, Lisa.


re: Discovery and Recovery: my PPCM story
Sunday, 20 October 2013 by Mary Carson

Lisa thank you for sharing, I also am glad to have this site for those of us affected by this silent monster. My love and prayers to you and your family.

 

Leave a Comment

You Must be a Heart Sister

 

Myheartsisters.com has been developed to raise awareness about Peri and Post Partum Cardiomyopathy and is used for educational purposes only. We encourage you to consult with health care professionals to obtain medical advice. This site contains personal accounts of heart failure in pregnancy. Information should not be used as an alternative to seeking professional medical help, where a proper evaluation or diagnosis can be made in person through a face to face consultation and medical tests.

Website Design by Passion Computing