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I'm so scared

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My Details

Lorie Ramirez;

Date Diagnosed :1/1/2013

Inital EF :30

Current EF :25

Pregnacy Number :1

Hi there! It was January 2013 that i was diagnosed with this illness, 2 months after i gave birth to my first child. On new years eve, i have difficulty in breathing due to my dry cough. The next day i went to the hospital and they found out that i have a community acquired pneumonia. I was admitted then to the hospital and do some laboratories. They found out the my heart is enlarged with an EF of 30%. I can't sleep at night, it's hard for me to breath that's why i'm not kying in bed instead i'm sitting on a chair. My feet are swelling.. They gave me lasix and a lot of medicines to stabilize my heart beat. I was out in the hospital for weeks and get back into it again.. They sent me in the ICU due to my high heart rate and low BP. My last confinement was Feb 2013 and until now i;m suffering for this illness. I am continiously taking my medicine and still hoping that i will be cured. It was really depressed me when my echo showed last July that my EF became lower from 30 to 25%. 

Please help me what to do. I dont have friends to talk to since they dont have any experience with this. i'M  really scared.

 

Please help me.

By Date Added: 8/9/2013 Date Last Updated: 8/9/2013

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Story Comments


re: I'm so scared
Sunday, 11 August 2013 by Jeanee Andrewartha

I will send you an email, Lorie with details of 2 doctors you can contact. I do not see the Ace Inhibitor in the medications that you have listed. It does concern me that you have made no improvement since January, and a change of medication or dosage should be considered and you will need a doctor to look into your records and work with you to do that. Luckily for the internet, this is possible.


re: I'm so scared
Sunday, 11 August 2013 by Jeanee Andrewartha

I will send you an email, Lorie with details of 2 doctors you can contact. I do not see the Ace Inhibitor in the medications that you have listed. It does concern me that you have made no improvement since January, and a change of medication or dosage should be considered and you will need a doctor to look into your records and work with you to do that. Luckily for the internet, this is possible.


re: I'm so scared
Friday, 09 August 2013 by Angie Jones

I am so sorry you are going through this. It does get better. Do you have a doctor that knows about ppcm? Sadly a lot off cardios do not have up to date information. There are some that specialize in it depending on where you are located. If you ever have any questions, feel free to contact me. This site is great and there are a number of women also on Facebook. Just search peripartum cardiomyopathy.


re: I'm so scared
Friday, 09 August 2013 by Lorie Ramirez

Thank you Angie and Jeanee. I'm so thankful that i saw this site. I'm from Philippines and i don't know if we have any medicines for PPCM. Now i'm taking up lasix, warfarin, vestar, aldactone, corolan, lanoxin, carvidolol, B complex and L- Carnitine. Hope this meds will help me.


re: I'm so scared
Friday, 09 August 2013 by Lorie Ramirez

Thank you Angie and Jeanee. I'm so thankful that i saw this site. I'm from Philippines and i don't know if we have any medicines for PPCM. Now i'm taking up lasix, warfarin, vestar, aldactone, corolan, lanoxin, carvidolol, B complex and L- Carnitine. Hope this meds will help me.


re: I'm so scared
Friday, 09 August 2013 by Jeanee Andrewartha

Lorie, Stay strong. There is a 5% error margin with Echos. The science is not exact. Please have a look at http://www.myheartsisters.com/recovery and if you have any questions, ask.

I hope your heart improves each day and that you get stronger. You need to believe for healing, and I hope you have people around you that can care for you, so your heart can rest.

 

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