4 and an half years in!

My lovely daughter (second child) arrived 4 and a half years ago, a very special day!   I had been experiencing some breathlessness late in pregnancy, but I had considered this to be normal late pregnancy symptoms.  A day or two after her arrival I experienced severe breathlessness, struggled to walk and needed to sleep propped up.  My GP initially diagnosed anxiety/ anaemia!  I was around 4-5 days after her arrival diagnosed with PPCM (e.f. 15-20%) and admitted to hospital, at which point I was told I couldn't breastfeed.  I (thankfully!) responded well to medication and was discharged after around 4 days.  I was eventually on just beta blockers and ACE and my e.f. (Slowly) recovered to 54% 3 years following diagnosis, so I was taken off my last small dose of bisoprolol (beta blocker) and discharged to go back for an out of clinic appointment a year later, to check if my e.f. was sufficient for me to come off the ACE as well.

However, much to my dismay, my ef had dipped to 42 %, so for the past 6 weeks I have been titrating up the beta blocker (to max dose)- now on cardevilol.  And my cardio seemed almost certain my e.f. will then go back I to normal range- it has been a worrying few weeks, but I am hopeful that the meds will be doing their job!  I go back to clinic for an ECHO in 2 weeks.

I have remained (super thankfully!) asymptomatic from a cardiac point of view, since around 6 months on, and exercise a lot.  Before the e.f. Dip I was even considering becoming a gym instructor!  But I have now been told to go a bit easier on the weights.....  So I am hoping the worst thing for me is that I stay on meds "for life" and continue the good health I've had so far........

My Details

  • Date Diagnosed: 27/02/2011
  • Child: 2
  • Initial EF: 15-20%
  • Current EF: 42%

Story By Abigail Findley

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I have a hard time finding another story quite like mine no matter how hard I look. I was 26 and pregnant with my second

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